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10 October, 2024

Top priorities set for inherited retinal diseases

Eye disease
6
10 October, 2024

Top priorities set for inherited retinal diseases

Eye disease

Did you know that one in 1000 Australians have an inherited retinal disease (IRD)?

Many individuals with an IRD will have progressive vision loss, making it the leading cause of blindness in working-aged adults in Australia. These conditions remain largely untreatable.

CMRI was proud to co-launch the research priorities for IRDs at NSW Parliament House with the support of Vision Australia. CMRI's A/Prof Anai Gonzalez Cordero was the principal investigator on the project which was led by Dr Eden Robertson. Prof Robyn Jamieson and Dr Alan Ma were also involved in the steering committee.

This project consulted those directly affected by IRDs and highlighted that the IRD community should prioritise research for treatments, alongside research that will support them to live well with their condition.

Read more here: 

Research priorities for Inherited Retinal Diseases in Australia: A James Lind Alliance Priority Setting Partnership (unsw.edu.au)